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natcarrasco

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natcarrasco

EDS random fact #16:

Testing has proved that those of us with the hypermobility type of EDS do not respond to local anaesthetics. We feel it all (or almost) but we're often dismissed as hysterics.

Needless to say, we hate going to the dentist...

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EDS random fact #3:

We are very delicate: we have risk of internal bleeding and organ rupture.

We actually should have "handle with care" stickers on :)

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EDS random fact #21:

The zebra is our mascot. There's a saying that goes "when you hear hoof-beats think horses, not zebras". It makes doctors think of the most common causes to symptoms. It often works-

-but zebras, as rare as they are, DO exist. Docs forget.

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EDS random fact #3:

Because of how widespread our symptoms are, we go undiagnosed for a long time (or ppl think we're crazy).

It's hard to connect things like velvet-soft skin, constant nausea and random dislocations...

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EDS random fact #17:

The joints in our fingers don't offer resistance to pressure. Trying to hold cutlery or pens "correctly", to press an elevator button, to open a can of tuna or to sharpen a pencil become challenges instead of tasks

But we are good with those!

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EDS random fact #26:

When we start developing symptoms, most of our tests come back as normal. It feels awful; many people think it's all in our heads or give up on finding a diagnosis.

We're not crazy! Awareness of rare conditions is crucial.

1

EDS random fact #1:

Ehlers Danlos Syndrome is a group of inherited disorders that affect our skin, joints, blood vessel walls and pretty much all of our body's structure.

Yet, we all look completely normal.

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